I won’t lie. We all cried today. I’m so overwhelmed and my heart just hurts. I hate that Bennett has to face so many challenges. It’s so not fair. He is the definition of pure and innocent and doesn’t deserve any of the challenges that’s been thrown at him.
Bennett was fitted with a little helmet today. He will be rocking his new accessory for 23 hours a day for the next 4 months. Despite all efforts his flat spot has not improved. Normal cranial asymmetry is 6 mm or less and his is 9 mm. We’ve been doing physical therapy since he was two months, using a tortle cap, flat head pillow and tons of tummy time but I still feel like a failure. He favors looking to the right when he sleeps - most likely because his musculature with the hemifacial microsomia.
Some days I struggle to find optimism.. today is one of those days. I keep reminding myself that he will not remember this. That it’s harder on us than it is on him. At least those are my hopes.
Today I will feel ALL the feels, cry all the tears and pray for a better tomorrow
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